My Keratoconus Journey - A Story of Denial and Acceptance
My name is Hannah. I am a daughter, a sister, a niece, a cousin, a friend, an artist, an avid reader, a photographer, and so much more. I ...
Keratoconus; or why I wear my sunglasses at night.
I first heard the word Keratoconus last fall (2017) at what I thought was going to be a routine eye exam. I had gone in to get my prescr...
How keratoconus complicated my life for the past 25 years
Dear Keratoconus: You have complicated my life for about 25 years. Can't say for sure because for so long I went undiagnosed. I have ...
Living A Hopeful Life With Keratoconus
I was diagnosed with keratoconus at age 18. I began wearing rigid gas permeable (RGP) contacts in both eyes at that time. I had cornea tr...
When Keratoconus Changes Your Life Plans
I had my whole life planned out. I enlisted in the ARMY. I was going to be there for 20 years then retire at the age of 38. Then I was go...
The Monday When World Closed Its Eyes on Me
Dear Me (version.6/2008), You’ve never been diagnosed with anything before. Right now you are standing broken and alone in a mostly empty ...
Dancing with the Music: a Keratoconus Journey
I have been living with keratoconus for nearly twenty years. Having distorted vision makes you feel so sad at times. To overcome this situat...
From Keratoconus with Love
In November 2015 I shared my first story about my diagnosis keratoconus (Dear Keratoconus, This is how I feel about you.) I was so happ...
A Keratoconus Patient Struggles with Scleral Lenses
Whoever said patience is a virtue, never worked with bubbles in their eyes! Almost a year ago I was fitted for and given my first pair of ...
I Was Shocked to Hear the Diagnosis of 'Keratoconus'
Growing up, I always aspired to be a pilot. I went for my first flight at the age of 14 and from that day on, I was hooked. I worked part ti...
A Welcome Packet for My Keratoconus Family
In the past 7 years since I was diagnosed with keratoconus, I started to join different online groups and meet other people with the conditi...
Keratoconus: Ghosting, Halos, and Glare, Oh My!
I was diagnosed with Keratoconus in 1994 while in my last year studying to be an American Sign Language Interpreter. It seemed to pop-up o...
You Don't Know What You've Got, Until It's Gone.
It really is true, when they say, you do not know what you've got, until it's gone. You really couldn't hit the nail on the hea...
Keratoconus: A new way to see the world
Hello! My name is Julia Teixeira and I am from Brazil. I am 31, but I discovered my keratoconus when I was 14. The day that I knew I have ...
Dear Keratoconus, This is how I feel about you.
Dear Keratoconus, This is how I feel about you. Every day I have to deal with you. You made me look stupid at work. I don't smok...
The Eyes of a Quilter
Check out Maryellen's Etsy shop (link at the bottom) to see her artworks. I was in my late 20s when I started noticing the shadows ...
What Do Keratoconus Patients Carry in Their Bags?
Photo: Gene Kenyon The idea of this post came to me when I was reading a similar discussion on our Facebook group , and I though it may ...
Keratoconus; A New Lease on Life
Wednesday, March 18, 2015
My keratoconus story begins just as one major life event ended and another was just starting. I finished my dissertation and successfully d...