Did anyone else's eyes change color like this after crosslinking for keratoconus? 👀

I'm Emily, wife and mother of two gorgeous boys. I got diagnosed with keratoconus in one eye about 6 years ago when I was pregnant w...

Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment a...

Growing up I was told I had a lazy right eye. At age 4, I had surgery to correct a squint and went through what felt like forever having ...

Our Facebook page has reached 5,000 likes! Thank you so much for helping to make this community such a great place for learning and ra...

We have asked our community members what are the biggest challenges they face in their lives because of Keratoconus. Here is what they ha...

I was diagnosed with keratoconus when I was 21, in 2008, but my doctor at the time did not really explain any proper care or future probl...

I am currently 29 years old. As a child I would be pretty healthy, I always felt proud because in a health exam I was told I had a 20/20 ...

Dear Keratoconus: You have complicated my life for about 25 years. Can't say for sure because for so long I went undiagnosed. I have ...

I was diagnosed with keratoconus at age 18. I began wearing rigid gas permeable (RGP) contacts in both eyes at that time. I had cornea tr...

I have worn glasses since high school, so annual visits to the ophthalmologist and optometrist were the rule. However, due to a job that ...

I am a massage therapist. One day, I was visiting patients at a factory and happened to play around with the eye chart on the wall. I cou...

From your friends here at the Keratoconus Group , we wish you all a very happy, healthy, and prosperous 2017. We hope your keratoconus jo...

On November 16, 2015—a week and a half before my 21st birthday—I was a nervous wreck sitting in the waiting room for my annual eye check ...

I had my whole life planned out. I enlisted in the ARMY. I was going to be there for 20 years then retire at the age of 38. Then I was go...

The Keratoconus Group has been both a source of information and hope for me since I found it about a year ago. It is helpful to hear othe...

What is Keratoconus? The word Keratoconus (kěr'ə-tō-kō'nəs) means cone-shaped cornea. keratoconus is an eye disease characteriz...

My name is Beth, I was diagnosed with keratoconus at 13/14, I live in England. Dear Myself (on the day i was diagnosed) Wow you weren...

Update January 2018: Corneal Crosslinking Insurance Coverage in the United States Does your insurance cover crosslinking for keratoconu...

What is one thing you wish people know about living with Keratoconus?  Tell us in the comments or post on Facebook, Twitter, Instagram, ...

Dear 16-year-old Chrissy, So you've just stumbled out of the doctor's office feeling very uncertain and stepping into the unkno...

Dear Me (version.6/2008), You’ve never been diagnosed with anything before. Right now you are standing broken and alone in a mostly empty ...

I have been living with keratoconus for nearly twenty years. Having distorted vision makes you feel so sad at times. To overcome this situat...

In November 2015 I shared my first story about my diagnosis keratoconus (Dear Keratoconus, This is how I feel about you.)  I was so happ...

Whoever said patience is a virtue, never worked with bubbles in their eyes! Almost a year ago I was fitted for and given my first pair of ...

It was inevitable that I would end up wearing glasses... both my parents wore them, all four of my grandparents and most of my aunts and unc...

The image on the left is my left eye which has started showing symptoms and the other two images are my right eye which I can only see fuzzy...

Growing up, I always aspired to be a pilot. I went for my first flight at the age of 14 and from that day on, I was hooked. I worked part ti...

Leah's eyes were tender, but Rachel was shapely and beautiful. -Genesis 29:17 "You have beautiful eyes," he said, and here D...

In the past 7 years since I was diagnosed with keratoconus, I started to join different online groups and meet other people with the conditi...

Our website has a new address:  www.KeratoconusGroup.org If you have linked to us from your websites, please make sure to update the ...

I was diagnosed with Keratoconus when I was somewhere in my mid teens. I cannot remember precisely because I immediately rejected the concep...

I have Keratoconus in my Right eye and need to wear a Hybrid contact lens to correct my vision to almost 20 20. (Glasses DO NOT WORK). My ...

My name is Márk Magyar , from Hungary. I saw a post on Facebook about the cornea transplant, and I thought that I send a few pictures about...

The day before my 21st birthday I found out what was wrong with me. Why I squinted and struggled in school all semester, why light suddenly ...