My Journey with Keratoconus: From Despair to Hope
Hi everyone, my name is Jessica. I was diagnosed with keratoconus when I was 18 years old. It was a shock to me because I had never heard ...
Rare Disease Day 2023 | Is keratoconus a rare disease? | Frequently Asked Questions
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment an...
November is Eye Donation Month
Join us in celebrating the gift of sight and raising awareness about corneal donation and transplantation during Eye Donation Month in Nov...
Keep your eyes safe on Halloween
Don’t let an eye infection be the scariest part of your Halloween. All contact lenses must be prescribed by a doctor, including decorativ...
People with disabilities want to be treated as equals in society
As Champion for the Persons with Disabilities Program, I thought I’d begin by telling my story. Several years ago, I went to a Lasik cente...
World Keratoconus Day 🎗️ #WorldKCDay 2022
Battling keratoconus is difficult. With common diseases there is a lot of research seeking to develop new treatments. But with rare or unc...
25,000 Facebook Group Members
Keratoconus Group's private Facebook group for keratoconus patients and eye care professionals now has more than 25,000 members! Tod...
20 Memes Anyone With Keratoconus Will Understand
Keratoconus is serious, but we don't have to be. While there's nothing funny about struggling with keratoconus , sometimes a little ...
Insurance Coverage for Corneal Cross-Linking (UPDATED 2022)
How much does Crosslinking for Keratoconus cost? There is limited evidence on the costs of corneal crosslinking, but it may be as high a...
Keratoconus; (Still) Dancing in the Dark: A Follow-up Story
This article is a follow up to one I had written over 2 and a half years ago. Groan with the title, right? Yet another the song reference....
Coronavirus and Keratoconus: What You Need to Know
With the spread of the coronavirus (COVID-19) throughout the world, including in the United States, patients with underlying health condit...
New Year's Greetings from Keratoconus Group
On behalf of everyone at the Keratoconus Group , we hope you have a happy, healthy, and prosperous 2020. For the coming year, we wish you ...
Keratoconus changed my life, my personality, and my soul—for good.
I felt like I was disappearing. Maybe it’s all a dream, I said. Maybe I’m dead, I thought. Maybe I’m going crazy, I believed. I don’t wish...
From Mexico with Keratoconus: Two Years with Scleral Lenses
It has been almost two years wearing scleral contacts, and this is a brief summary of how this has had a impact in my life! Now it has b...
A Very Honest Talk About Keratoconus
It's been 6 years now since I discovered I have keratoconus. I guess it took me a while to talk about it openly because it is a ...
Finding Hope in the Face of Keratoconus
I was diagnosed with Keratoconus when I was 11 years old. I remember it so clearly, I went to sleep one night and had perfect vision and w...
I Refuse to Let Keratoconus Snatch My Smile
They say "let your smile change the world but don't let the world change your smile." I felt like these words were specifica...
My Keratoconus Journey - A Story of Denial and Acceptance
My name is Hannah. I am a daughter, a sister, a niece, a cousin, a friend, an artist, an avid reader, a photographer, and so much more. I ...
13 Celebrities Who Know What It's Like to Have Keratoconus
It can be a long time before you even find other people who have keratoconus, and an even greater challenge to meet someone face to face. ...
Rare Disease Day 2019
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment an...
Have you ever lost a contact lens?
Keratocat has lost his contact lens! Can you help him find it? More Keratoconus Cartoons Losing contact lenses is a real challenge for...
News Anchor's Life With Keratoconus
My name is Phil Sanchez, I'm a news anchor at WISH-TV in Indianapolis, Indiana and I have Keratoconus. My battle began 10 years ago. ...
November: A Month for Spreading Keratoconus Awareness
Ever since the National Keratoconus Foundation (NKCF) has designated November 10 as World Keratoconus Day , this time of year has become i...
Keratoconus: A Journey for Answers
Hello, I’d like to introduce myself. I am Bekah, a 42 year old female who was diagnosed with Keratoconus more than 6 years ago. I'd li...
Marine battling keratoconus sees the world through new eyes
A native of Baton Rouge, Louisiana, 1st Sergeant Michael Landry graduated high school in 2001, and earned the title Marine shortly thereaf...
🎃 Keratocat wishes you a happy and safe Halloween 👻
Whether you're a ghost or zombie, vampire or witch, poor costume choices, including decorative (colored) contact lenses, can cause inj...
Keratoconus; or why I wear my sunglasses at night.
I first heard the word Keratoconus last fall (2017) at what I thought was going to be a routine eye exam. I had gone in to get my prescr...
May is Healthy Vision Month: Learn How to Keep Your Eyes Healthy and Safe
Healthy Vision Month is observed each year in May. This is a great time to learn how vision problems can affect you and your loved ones, and...
When Keratoconus Makes Its Way Into Our Dreams
The eye fairy has visited Keratocat in his sleep and brings hope of new treatments and possible cure for his eye disease, keratoconus!
Emergency Preparedness for People with Keratoconus
Are you prepared for emergencies and natural disasters? Do you have an emergency kit? Do you have extra solutions in your emergency kit? A...
Cochrane Eyes & Vision is looking for patient peer reviewers
The Cochrane Eyes and Vision Group is looking for patients to provide feedback and comments on the below systematic reviews. Patients sho...
Keratoconus tips and advice from people who understand it
We asked members of our community for tips and advice for those newly diagnosed with keratoconus. Here is what they had to share:
From Mexico with Keratoconus | De Mexico, con Queratocono
From Mexico with Keratoconus My life with my left eye blind and my right eye with a rare disease: Keratoconus When you do research t...
Keratoconus: the Process of Acceptance and Control
I was diagnosed with Keratoconus at the age of 19. It progressed so soon I had no other option but a cornea transplant. In 2011, my surge...
Driving Under the Influence of Keratoconus
Driving could be challenging for keratoconus patients, especially at night because of halos or starbursts around lights.
Building a Better Future for Keratoconus Patients
There was a time that only a few people had heard about keratoconus, but times are changing. We will be celebrating the 2nd World Kerato...
Keratoconus and How it Helped Me See
I was diagnosed with keratoconus, an eye-disease that misshapen the cornea within the eye, in 2003 when I attempted to get my driver's...
Perspectives on Patience: Navigating the Keratoconus Journey
It was the first time, evidently in quite a long time, that anyone had isolated my eyes such that I noticed how obscured the view from my ...
Keratocat at the Capitol: National Keratoconus Day
In less than two weeks we will celebrate the National Keratoconus Day ! This year, Alliance for Eye and Vision Research (AEVR) will hol...
Spread Keratoconus Awareness by Using Our Facebook Frames
You can now spread keratoconus awareness with each and every interaction on Facebook without even saying a word. As you may have noticed, ...
World Keratoconus Day / National Keratoconus Day 2017
November 10 is World Keratoconus Day. Let's join together to recognize World KC Day and spread the word. This is our chance to rais...
Are You Still Waiting for the Perfect Contact Lens Fit?
Tell us about your journey to finding the right contact lens. Have you found your perfect contact lens yet? or are you still trying and ...
Help to Spread Keratoconus Awareness on World Sight Day
We are really excited to have launched our first ever Thunderclap and we need your support to make it a success. A Thunderclap is a way...
Keratocat Cartoon: Reading with Keratoconus
Here is the new Keratoconus cartoon! This is the way Keratocat reads and uses his phone after removing his contact lenses. Tell us w...
A Keratoconus Journey Through the Himalayas
Singalila in the Himalaya is the story of a young Keratoconus patient finding his way in life to trek through the Himalayas and finds that, ...