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World Through Keratoconus Patients' Eyes!

lichtvogels by recrotka, on Flickr:

With a keratonconus you see something like this

There Will Be No Miracles Here by Patrick_Down, on Flickr:

The ghosting in this image - I've no idea what's causing it - just happens to give a rough approximation of how keratoconus affects how I see the world...

Yesterday's Goodbye by mRio, on Flickr

Keratoconus Vision Simulation! #Keratoconus can cause significant distortion of vision, nearsightedness, irregular...

Posted by Keratomania on Sunday, November 11, 2012

#WorldCup Keratoconus Vision Simulation! Keratoconus is a progressive eye disease in which the normally round cornea...

Posted by Keratomania on Tuesday, June 17, 2014

Can’t wait from r/Keratoconus

This looks familiar from r/Keratoconus

Was told I could possibly have Keratoconus because this is what I see at night (more details inside) from r/Keratoconus


There Will Be No Miracles Here (342/365)

Yesterday's Goodbye

A post shared by Shelley Shizzle (@littlemissalien) on

Keratoconus Vision Example - Power Light

Share to spread awareness!


  1. I was recently diagnosed with Ectasia/Keratoconus following LASIK surgery in 2006.

    My left eye is okay thank God but the right eye is horrible.

    I'm undergoing a procedure to implant something called Intacs in my right eye and then Corneal-Crosslinking in both eyes.

    Intacs reshape the cone shaped cornea but do not stop the progression of Keratoconus for some patients. Fortunately, Intacs are covered by most major medical insurance plans and are the only approved treatment in the U.S. Under the FDA's humanitarian device exception for diseases that affect less than 4,000 people per year.

    Corneal Cross linking has been available in Germany as a routine and highly effective treatment for Keratoconus since 1998 and now available in the entire European Union, Canada, and a number of other places worldwide.

    It is sadly still experimental in the U.S. And I'm not sure why considering that it has been proven to halt progression in over 90% of patients with Keratoconus with a high rate of success and safety record and offered as a routine treatment to children as young as 10 in Europe.

    It is undergoing clinical trials in the U.S. But most have closed and now the FDA just has to approve the treatment.

    A number of doctors are doing it off-label to help patients suffering from Keratoconus who cannot wait for FDA approval.

    The catch is, it is not covered by insurance yet because it is experimental and can cost as much as $5,000 for both eyes.

    Hopefully it will be approved by this year and people won't have to suffer with this anymore.

    It's a horrible, horrible condition.

    1. Hi Adam, thanks for your comment. if you would like to share your story as an article on this blog, you can do so by filling the form on this page: http://keratoconusgroup.blogspot.com/p/share-your-keratoconus-story.html

    2. Hi adam, my condition is exactly like you. But After the CXL in my right eye my left eye also seeing the halos. Is this happening with you?

    3. As an optometrist with 16 years experience in fitting keratoconic contact lenses, there is no advantage to INTACS. I have seen several patients who have had the segments removed due to complications. The fact that they are not available on the NHS in the UK (whereas cross linking has been available for 7 years) tells you all you need to know.

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  3. Adam,
    Thanks for sharing. I have keratoconus in both eyes. I am 36 and it is getting to the point that I need the surgery. I went to a specialist and he recommended intacs, then cross linking. Adam please share any results you get. I was quoted $12,000 + $4,000 for intacs. No quote on the cross linking. And this was just for the left eye.

  4. Got keratoconus on both eyes, am 24, Am in a remote place in kenya africa, can i also get aid, here we luck all sots of treatment.

  5. in USA - producers of contact lenses could go bankrupt if people with keratoconus get Corneal Cross linking treatment my husband got it and I would like him to get this treatment please see this page https://www.justgiving.com/crowdfunding/KKujawa and reshare on Facebook to support my story thank you

    1. Cross linking does not "cure" keratoconus. It just slows down the progression in most cases. The majority of patients who have cross linking still need to wear contact lenses after the procedure. Some patients still progress afterwards and due to the asymmetrical nature of the condition, many people's corneas are too thin for cross linking. I fit 100s of keratoconics a year with contact lenses, this figure has not reduced since the availability of cross linking on the NHS

  6. I sure can relate. I was diagnosed in the right eye 1968 and the left in 1970. Here is the story that this wonderful group did on me last month. https://www.keratoconusgroup.org/2017/03/how-can-you-ever-say-thank-you-for-your-eyesight.html

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  8. https://www.youtube.com/watch?v=Wct1OE1Yl5M

  9. I was recently diagnosed with pellucid marginal degeneration in my right eye only. It has been great to have these images so I can show people what I see with my right eye.
    As of now it is mild and will try getting better vision with glasses.

  10. I have also diagnosed with keratoconus in my both eyes but in my right eye the keratoconus is at its advanced stage. doctors recommended me the treatment via CXL. BUt it can't help me alot. MY vision is not good after the CXL. I don't know what to do now. I do the follow up after every 3 months. But I can't understand what gonna be happen next.
    anyone who knows the better solution?

  11. My wife just had corneal cross-linking completed. The last visit to Dr. Stulting - he made her stop driving until after her last appointment. Corneal cross-linking was approved by the FDA in 2016. She was diagnosed 25 years ago. It's not for the faint of heart, but will stop the progression. The pain lasted approximately 24-36 hours, and the eyes settle in about 3 months. She will finally be able to have multiple options for contact lenses. We are hopeful.