Keratoconus Group is a support community for keratoconus patients, their families and friends, and eye care professionals. We are a team of volunteers who either have keratoconus or have had corneal transplant, and we work to create a welcoming and friendly community for keratoconus and corneal transplant patients.
Our community has started back in 2007 and we have recently celebrated our 15th anniversary. Today we are the largest keratoconus support network with more than 43,000 keratoconus patients and eye care professionals on our forums where members could ask questions, get support, and share their knowledge.
For someone with an uncommon disease, the unknowns are frightening and it is very depressing when you feel that no one understands you. But once patients be able to get their answers and share their problems with others who understand them, they would no longer feel frightened or desperate. That is why we will do everything we can to raise awareness about keratoconus.
Keratoconus Group has communities on Facebook and Reddit with over 43,000 members where you can join and connect with other people who have keratoconus, to ask questions, share your experiences, get tips and advice, and learn from experts.
Facebook Group
Our Facebook group is the largest online community for keratoconus with over 28,000 members from around the world. You can join our Facebook group by visiting this link: Facebook.com/groups/KeratoconusGroup
Once you join, you can post your questions, stories, photos, videos, or anything related to keratoconus. You can also comment on other posts, like or react to them with emojis. You can also use the search function to find posts that interest you.
Reddit Community
Our Reddit community is a subreddit dedicated to keratoconus with over 14,000 members. You can join our subreddit by visiting this link: Reddit.com/r/Keratoconus
Once you join, you can create posts or comments using text, images, links, or videos. You can upvote or downvote posts or comments or give them a reddit award using reddit coins. You can also use the search function to find posts that interest you or use the filters to sort posts by new, hot, top, or controversial.
Keratoconus Group's Website
On our website (KeratoconusGroup.org), you can find a variety of resources and information about keratoconus, such as frequently asked questions and answers about keratoconus, personal stories and testimonials from people living with keratoconus, and tips on how to cope with keratoconus and its treatments.
You can participate in the blog by sending your stories and photos to [email protected]. Your story may be featured on the website and help inspire others who are going through similar challenges.
Keratoconus Group on Social Media
Social media is a great way to connect with other people who have keratoconus, share your stories and experiences, and get the latest news and updates on keratoconus. Keratoconus Group has a strong presence on various social media platforms, such as Facebook, Twitter, Instagram, Threads, Pinterest, YouTube, and LinkedIn.
By following us on these social media platforms, you can stay connected and informed about keratoconus, contribute to raising awareness and understanding of this condition among the public and the medical community, and find inspiration and hope from other people who are living with keratoconus and overcoming their challenges.