Keratoconus is a condition where the cornea, the clear front part of the eye, becomes thinner and bulges outwards into a cone shape. This causes blurry vision, sensitivity to light and glare, and difficulty with daily activities like reading or driving. Keratoconus usually affects both eyes and can progress over time.
If you have keratoconus, or you know someone who does, you may feel alone or frustrated by the challenges of this condition. But you are not alone. There is a community of people who understand what you are going through and are ready to support you.
Keratoconus Group is an online support community for people with keratoconus, post corneal transplant patients, their friends and family, and eye care professionals and researchers. It is a safe place to discuss and share information about keratoconus, pellucid marginal degeneration (PMD), keratoglobus, post-LASIK ectasia, corneal transplant, contact lenses, and more.
Online communities
Keratoconus Group has communities on Facebook and Reddit with over 43,000 members where you can join and connect with other people who have keratoconus, to ask questions, share your experiences, get tips and advice, and learn from experts.
Facebook Group
Our Facebook group is the largest online community for keratoconus with over 28,000 members from around the world. You can join our Facebook group by visiting this link: Facebook.com/groups/KeratoconusGroup
Once you join, you can post your questions, stories, photos, videos, or anything related to keratoconus. You can also comment on other posts, like or react to them with emojis. You can also use the search function to find posts that interest you.
Reddit Community
Our Reddit community is a subreddit dedicated to keratoconus with over 14,000 members. You can join our subreddit by visiting this link: Reddit.com/r/Keratoconus
Once you join, you can create posts or comments using text, images, links, or videos. You can upvote or downvote posts or comments or give them a reddit award using reddit coins. You can also use the search function to find posts that interest you or use the filters to sort posts by new, hot, top, or controversial.
Keratoconus Group on Social Media
Social media is a great way to connect with other people who have keratoconus, share your stories and experiences, and get the latest news and updates on keratoconus. Keratoconus Group has a strong presence on various social media platforms, such as Facebook, Twitter, Instagram, Threads, Pinterest, YouTube, and LinkedIn.
By following us on these social media platforms, you can stay connected and informed about keratoconus, contribute to raising awareness and understanding of this condition among the public and the medical community, and find inspiration and hope from other people who are living with keratoconus and overcoming their challenges.
Keratoconus Group's Website
On our website (KeratoconusGroup.org), you can find a variety of resources and information about keratoconus, such as frequently asked questions and answers about keratoconus, personal stories and testimonials from people living with keratoconus, and tips on how to cope with keratoconus and its treatments.
You can participate in the blog by sending your stories and photos to story@keratoconusgroup.org. Your story may be featured on the website and help inspire others who are going through similar challenges.
Connect with People Who Understand Keratoconus
Keratoconus Group is more than just a support group. It is a platform for raising awareness, educating the public, and advocating for better care and research for keratoconus. By joining Keratoconus Group, you can help spread the word about this condition and make a difference in the lives of others.
Whether you prefer Facebook or Reddit, or both, Keratoconus Group invites you to join our online communities and become part of a supportive and informative network. You don't have to face this condition alone. Join Keratoconus Group today and meet thousands of people who are in the same boat as you.