Career in the haze of keratoconus

Hi, I'm Mohamed and I'm 25 years old. I work as a neurologist. I was diagnosed with keratoconus about 4 years ago-I was in the med school- I could manage it with glasses for 1 year then the condition progressed and rgp lenses were recommended and managed to do just fine with them -with a few inevitable complications- for almost 2 years but still the condition was progressive and I had to do epi-on corneal crosslinking last February hoping the progression to stop and even the vision to improve, but I was wrong as it turned out and the CXL l did no good to me.

Corneal Ring Implants for Keratoconus


The progression continued despite the CXL and I had to go back to the RGP lenses with a small difference this time , I couldn't tolerate them any more, I tried other lenses but still no difference. So I moved back to glasses with all the limitations regarding the visual acuity (6/24  bilateral) the haze and glares which became disabling regarding my career.

I checked with more physicians and they agreed that the next proper step would be DALK as my KC is advanced and that the corneal rings wouldn't be an effective or applicable solution considering my KC stage and my job.

I'm very reluctant when it comes to surgery and I can only see the complications that would happen (vascularization, rejection, opacification) so I don't want to do it and at the same time I can't go on with my career and my life like this.

I'm considering making a career shift and wait for my vision to decline in its natural course.

I don't see this ending well for me whatever the decision I make.

UPDATE 1: I decided to go after the possibility of keratoplasty but I was rejected by the committee responsible for assessing KC patients and advised me to do the rings instead. So I will be having the rings in both my eyes by the beginning of the next month.

Corneal Ring Implants for Keratoconus

UPDATE 2: I had my corneal rings surgery yesterday on both of my eyes. I have follow up appointment tomorrow to assess the response and hopefully get a new glasses prescription that will help me see clearly again.

6 comments:

  1. You should cross link again. It should stop the progression.

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  2. Hi Mohamed, you're doing well for yourself...being a neurologist at 25. Don't let KC stop.
    You should have probably gotten an epi-off CXL when you did. With the rings in now, i'd suggest you go for scleral CL rather than glasses, that's after the healing.

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  3. Hi Mohamed! I have intacts and they really work for me. I can tell you it is not a miracle, but they help a lot, including a better glasses adjustment. The bad thing is the reflections at night, and your eyes are like mine. So, do not give up! Try to rest and in a few days you will fell better to have a glasses and lenses adaptation. We are togheter

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  4. Hello Mohamed! I feel you, regarding the difficulties of planning and having a career as a young man. I'm 24, and, for know, I'm good with my RGB lenses that I can tolerate just enough for a 9 hours day of work.

    Good luck with the treatment, I'm sure you'll be fine! keep us updated. :)

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  5. Hi Mohamed,
    Don't give up. You have done so much for yourself at such a young age. Don't let this horrible condition take over. keep fighting with your doctor for the best treatment. Good Luck!!! I know exactly how you feel.

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  6. Hi dear Friend, I can feel all ur issues as I m a doctor too.. mine was diagnosed 14 years back... I m still living with it.. I did my undergraduate in dentistry n m doing my masters now..
    I take keratoconus as my lucky charm as I value each little things ... We should be proud of ourselves n keep moving on.. I have faith in medical science .. in the coming years... There will be better treatment opportunities :) take care.. be proud of urself. Ur a fighter :)

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