Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. the first Rare Disease Day was held on February 28, 2008, the date was chosen because February 29 is a rare day.
This February 28 marks the tenth edition of Rare Disease Day. the theme for this year is research and its slogan is 'With research, possibilities are limitless'.
Rare Disease Day 2017 is an opportunity to call upon researchers, universities, students, companies, policy makers and clinicians to do more research and to make them aware of the importance of research for the rare disease community.According to the National Eye Institute's published data, keratoconus is considered a rare disease. we believe this day is a great opportunity for us to raise keratoconus awareness by joining the Rare Disease Day events. we, too, believe that research is key as it brings hope to the millions of people living with a rare disease across the world and their families.
We proudly support the Rare Disease Day events by becoming a friend of Rare Disease Day 2017 and we would like to thank RareDiseaseDay.org and the European Rare Diseases Organisation (EURORDIS) for this great opportunity.
We would also like to thank the Reddit team for approving a free sidebar advertising for our subreddit to help us spread keratoconus awareness during February.It is official!!! We are friend of #RareDiseaseDay 2017 - Many thanks to @RareDiseaseDay and @EURORDIS https://t.co/wnNQofzUfJ— Keratoconus Group (@KeratoconusGRP) February 20, 2017
If you are interested in posting updates on your website and social profiles about the Rare Disease Day, you can find helpful materials on these Rare Disease Day websites:
