Our keratoconus community is now 17 years old!
Our community which started as a small group back in 2007, is now the largest online community for people with keratoconus, pellucid marginal degeneration, post-LASIK ectasia, and those who had corneal transplant. Today there are more than 46,000 patients and eye care professionals on our forums where members could ask questions, get support, and share their knowledge.
It has been rewarding to see that the idea of spreading keratoconus awareness has grown stronger each year. Over the past sixteen years, what began as a small support group has grown into a global community with more than 46,000 members on Facebook and Reddit, and over 42,000 social media followers.
Connecting with others who know first-hand what you are going through can help reduce feelings of isolation, fear, and hopelessness. Staying motivated and positive is much easier when you have others you can turn to and lean on to help you get through tough times.
Thanks to our dedicated volunteers and thousands of contributors who share their knowledge and experience on our forums everyday, today our keratoconus community is an essential destination for keratoconus patients and eye care professionals.
Thank you all for making this community such a great place to learn about keratoconus, discuss its challenges, and get support. Thank you for the knowledge you share, and for understanding when no one else does.
Join our Facebook Group to ask questions and share your knowledge with other keratoconus patients and eye doctors, and help us in creating a stronger community that fosters new relationships between patients, their families, eye care providers, and researchers.
Join Keratoconus GroupTell Your Keratoconus Story
Join us in celebrating our birthday by sharing your stories and telling others how this community helped you through keratoconus challenges.
You can email your keratoconus stories and photos to story@keratoconusgroup.org and we will share them with our community.
What is Keratoconus?
Keratoconus (KC) is a degenerative condition of the eye in which the normally round, dome-shaped cornea becomes progressively thinner. this causes a cone-like bulge to develop in the area where the cornea is thinnest- usually in the center.
Keratoconus occurs in about 1 out of every 2,000 people in the general population and it is found in all parts of the world and in all ethnic groups. If left untreated, Keratoconus could lead to significant visual impairment and legal blindness.