Keratoconus: A new way to see the world

Hello! My name is Julia Teixeira and I am from Brazil. I am 31, but I discovered my keratoconus when I was 14. The day that I knew I have cried so much. I was born in a small town in Brazil and my doctor did not have so much experience in keratoconus. So, he suggested me to look for a Hospital in a big city. Well, I used to wear glasses since my age 10, but the keratoconus changed my life. Once a year I traveled with my family 6 hours by car to visit the Eye Hospital in Belo Horizonte. The doctors were very clear with me and I started to wear Rose K. 

Julia Teixeira - Keratoconus: A new way to see the world

All my life I had to live with allergy and was not so easy to stay with "solid" contact lenses. 

When I was 19 I moved to SP and I needed to visit another doctor. Well, my surprise was when I was 28 that doctor told me that I need to have a transplant in my left eye. I felt down. I cried all day long and had trouble in my job. So, one day I was crying in a bathroom about the transplant possibility and a friend of mine gave a keratoconus doctor specialist number. I made the phone call that day and one week later I was being examined by Tadeu Cvintal – the most important doctor in corneal transplant in Brazil. He told me that I did not need surgery and I had the possibility to wear scleral lenses. He recommended being patient to Dr. Marcelo, his friend and a good doctor too.

Julia Teixeira - Intacs corneal implants (1) Keratoconus Group Blog

So, I felt hope in that moment, but at the same time angry because the other doctor could operate my eye. 

My journey with keratoconus was not in the end. I used scleral lenses about 3 years, but my allergy began again and  my time with scleral was not so long. After the 30s the hypermetropy appeared and I did not adapt more with scleral. So, my doctor advised me that problem could worse. Well, I began depression, because I like to practice sports, go to the beach and keratoconus was a prison for me. I started to have panic attacks and my vision was worse. My only exit was try Intacs, even if they could not work form me.

Julia Teixeira - Intacs corneal implants (2) Keratoconus Group Blog

I took 4 months to decide insert Intacs. I was shaking and nervous, but it was my freedom. The surgery was ok and my doctor was very confident. Well, Now I am here, three months later, writing this article for you. Without glasses and contacts lenses. The surgery was a success! My left eye is so perfect that it compensate my right eye. 

I will be married in a few weeks and I am free now. Every day I pray for the doctors and thank God to be blessed!

The above story was shared by Julia Teixeira.

4 comments:

  1. I am very happy to see my post here! :-)

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  2. I don't know why there is so much negativity about transplant . I had it and I am happy with the vision. I know many people who had it hmm

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  3. I am very happy for your progress and what I am reading from you of keratconus treatment advancements.

    I have been living with keratconus for more than fifty years. And I like yourself my life has been shaped by this disease.

    My own story is one of spiritual and psychological transformation that has brought me to this place and time.

    Soon I may share some of my story.

    But for now I am just wishing you and all the many others who share this particular journey Merry Christmas.

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  4. thats nice..may you get better..

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