I have had keratoconus for just about 5 years now. I have been living with keratoconus untreated for the entire time. I am just about to get my sclera contacts. I am just waiting for the eye doctors office to call me back and let me know I can pick them up.
Initially, when I first noticed slight halos around lights, I did not think too much of it. I learned to live with it, and I have been for about five years now. my biggest piece of advice to anyone reading this that thinks they might have it but can live with it. Just get it checked out.
I am at the point now were I am having major troubles driving, especially at night. I am constantly afraid that I am going to hit someone walking on the side of the road because I cannot fully see correctly. I should have just gotten this taken care of when I first noticed something was funky about my vision. The process of having this diagnosed has been an absolute nightmare.
I initially went to the eye doctors back in September to have my vision checked. The first person I saw told me there was nothing they could do. Apparently this doctor didn't even know what keratoconus was because they didn't even mention it to me as a possibility. (I didn't know what it was at the time either so I didn't mention it.) The second doctor did diagnose me with keratoconus, but the only availability they had to fit corrective lenses was two months out. I told the doctor I could not wait that long, so I decided to go to a different eye doctor's office. doing so, I needed to start from square one again, my initial appointment was just the new doctor re-diagnosing me. They needed to schedule a month out for the fitting. I just needed to hold my tongue and wait.
It is absolutely crazy to me that I have a degenerative eye disease that impairs my vision to the point that I can barely drive at night, and I am just now getting corrective lenses after initially going to the doctor's office starting in September. Its almost over.
Anyways, I am excited to get my contact lenses, and have my vision return to what it should be.